So, I'm writing this a few days after the fact. It's been beyond crazy in the Bonecutter household with Berklee's condition. We aren't getting much sleep but we're still somehow functioning good and not killing each other haha. I will tell you that our relationship with God has gotten so much stronger and alot closer through this. I have never not once asked God, "Why Berklee? Why us?" It's all in His plan. When we got Berklee home on Monday after her first hospital stay, we started to read the Bible a lot more, our Scriptures for Parents book, did a WHOLE lot of praying, and started loving Berklee on a whole new level. We haven't eased up on any of those four things. We continued to pray for good days and good nights for Berklee. On Thursday, though, Berklee went back into SVT. Now, our pediatric cardiologist said she would go in and out of SVT but to be patient with it and wait an hour or so before going to the doctor. John had to go back to school on Thursday, so it was me, Berklee, and Ace when she went into it. I stayed so cool and calm and thought "Hey, I can handle this!" After an hour and half though, I made a trip to the pediatrician. He then confirmed that she was SVT and tried to flip her, smash ice in her face, and gag her to get her to convert out of it. She never did so, he's words I won't forget, said ,"Don't poke along to Cabell Huntington, but don't drive like a maniac. Just get Berklee to the Pediatric ICU as quick as you can and rush her to the 5th so they can start on her." WHAT?! First of all, I lose it there. I don't want my baby back in the ICU, I don't want to see her all wired and IV'ed up again, and I don't want her made into a pin cushion like she was on Friday. I drive fast to the hospital with tears thinking of the IV and praying like crazy that she'd somehow convert herself out of SVT. We get to the hospital and rush up to the ICU and get her immediately hooked up to the heart monitor and guess what? God is good - she converted herself! Great news for Berklee!! You go girl! Of course, we still had to stay the night for observations and Berklee ended up getting an IV that I fought so hard for her not to get. She ended up getting poked twice and handled it a lot better than I did. We got to talk to the cardiologist and he said she looked fine and didn't need to be at the hospital but she had to stay the night. He said that she would have more episodes of SVT but to be patient and wait a few hours before going to the doctor. We spend the night and John finally slept. At home, he stays up to watch Berklee and make sure she is okay, but it finally caught up to him and he finally! slept. We got out of the hospital Friday but not after some drama :(
First, we ask for 2 chairs so that John and I could stay with Berklee. We get told "It's policy only one can stay." To which John replies, "I don't think you're getting her mother out of there and I know I'm not leaving so if I have to talk to managers or whoever, we're both staying." Second, the cardiologist tells us we don't need an IV :) Yay! but the resident comes in and threateningly says,"It is policy that all patients have IV's. You either get the IV or there will be lots of paperwork and signatures due to your decision." !!!!!! Ummm, yeah, don't threaten me at this state of mind mister! And third, but by far the worst, which I'm still steaming over - her medication. They were 30 minutes getting it to her at her 6 pm dose. This medicine is something that has to be taken on the dot, so we're freaking out. Then at 12:10 am, 10 minutes late, the RN comes in to say that someone needs to go our house to check her dosage before they will give us her meds! So I call my dad who rushes over to look but the key breaks in the lock at the house so he has to rush back to his house to get another key and finally after at hour we get the answer the RN needed to which he relpies, "We are going to hold this dose because her heartrate is low and we don't want to lower it more." Um, HELLO - She's asleep, it's going to be low! We get that dose at 2 am after the doctor noticed she didn't get it. Again, the resident screwed up. But anyway - we finally leave and get home around 1 pm.
At around 4:30 pm, John noticed Berklee get really fussy then crash out. This is a big sign that she has gone in SVT. So we get out our stethoscope to check and sure enough her heartrate is going nuts :( If you ever want to feel what eternity feels like, try waiting out your child's heart to slow down. It's so scary! So John has Berklee and he's reading Scripture to all of us while I clean because of the nervous energy I got while we wait and wait and wait for her heart to go back to normal. Eventually, my family comes over just to be a suport system while we wait. 2 1/2 hours later - Miss Berklee converted herself out of SVT! :) :) :) There is no better sound these days than listening to her heart beat like it should.
Needless to say, John, Berklee, and I are surviving this SVT the best way we know how., through the Lord. He hasn't presented us with anything we can't handle and we're getting a lot stronger in Him through this.
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